Joshua my miracle
Apr 18, 2007 1:11 AM
Hello,
Today I took my Daughter to her ballet class. I had Joshua(5 year old once 25 weeker) and Nathan(almost 2) with me. One mom walked over to me and looked at Josh and asked, "Is he your's too?" I said yes (usually he is at preschool). She said," Is he younger than your daughter?" I said no he was almost six. She looked surprised and said," WOW, he's kind of small isn't he?" I then told her that he was a miracle and a preemie that was born 15 weeks early...so he had some feeding and growth issues, but he was very smart. She kept saying how small he was. She was trying to be friendly and nice, but it was kind of rude! Maybe it wouldn't have been so bad if he wouldn't have been standing right there. He can hear what people say and he knows food is an issue, so these comments didn't really help.
Last night I sang Joshua's nightly song to him. I heard his little sweet vioce singing right along with me. I reflected back to when he was so small and so sick in the NICU. I used to sit by his bed and sing him the same song over and over again. We were told that he would be blind, deaf and a vegetable in a wheel chair. The words to this song mean so much to me. When he sings it I realize just how much of a miracle he is and just how many gifts our Father in Heaven gives to each of us, even if we can't see or hear.
Whenever I hear the song of a bird
Or look at the blue blue sky,
Whenever I feel the rain on my face
Or the wind as it rushes by,
Whenever I touch a velvet rose
Or walk by our lilac tree,
I'm glad that I live in this beautiful world
Heavenly Father created for me.
He gave me my eyes that I might see
The color of butterfly wings.
He gave me my ears that I might hear
The magical sound of things.
He gave me my life, my mind, my heart:
I thank him reverently
For all his creations,
Of which I'm a part.
Yes, I know Heavenly Father loves me.
--Clara W. McMaster
I wish you could all hear the beautiful tune that accompanies these inspired words. It truly touches my heart. Especially when my almost 25 weeker, surviving twin, with grade three plus brain bleeds, hydrocephalus, shunts, C.P., BPD(vents including ossilation vent), athsma, PDA (surgery), ROP(surgery), blood transfusions, paralized vocal chords, hernia that miraculously dissapeared, growth and feeding issues, reflux, therapies galore, daily medications, processing issues, supposed to not talk, hear see, or walk lays in his little bed singing with his beautiful little voice. He has difficulties, but for some reason he is able hear the song of a bird. He is able to see colors on butterfly wings. He is alive, he has an inquisitive mind, and he has a loving heart.
I feel so blessed to be the mother of such wonderful children....Jacob, Joshua, Hannah and Nathan. Even though Jacob was here for so brief a time, I know that he was and is a part of Heavenly Father's creation spoken of in that song; just as each of my children are.
My thoughts are with you and your little ones.
Tiffany
Today I took my Daughter to her ballet class. I had Joshua(5 year old once 25 weeker) and Nathan(almost 2) with me. One mom walked over to me and looked at Josh and asked, "Is he your's too?" I said yes (usually he is at preschool). She said," Is he younger than your daughter?" I said no he was almost six. She looked surprised and said," WOW, he's kind of small isn't he?" I then told her that he was a miracle and a preemie that was born 15 weeks early...so he had some feeding and growth issues, but he was very smart. She kept saying how small he was. She was trying to be friendly and nice, but it was kind of rude! Maybe it wouldn't have been so bad if he wouldn't have been standing right there. He can hear what people say and he knows food is an issue, so these comments didn't really help.
Last night I sang Joshua's nightly song to him. I heard his little sweet vioce singing right along with me. I reflected back to when he was so small and so sick in the NICU. I used to sit by his bed and sing him the same song over and over again. We were told that he would be blind, deaf and a vegetable in a wheel chair. The words to this song mean so much to me. When he sings it I realize just how much of a miracle he is and just how many gifts our Father in Heaven gives to each of us, even if we can't see or hear.
Whenever I hear the song of a bird
Or look at the blue blue sky,
Whenever I feel the rain on my face
Or the wind as it rushes by,
Whenever I touch a velvet rose
Or walk by our lilac tree,
I'm glad that I live in this beautiful world
Heavenly Father created for me.
He gave me my eyes that I might see
The color of butterfly wings.
He gave me my ears that I might hear
The magical sound of things.
He gave me my life, my mind, my heart:
I thank him reverently
For all his creations,
Of which I'm a part.
Yes, I know Heavenly Father loves me.
--Clara W. McMaster
I wish you could all hear the beautiful tune that accompanies these inspired words. It truly touches my heart. Especially when my almost 25 weeker, surviving twin, with grade three plus brain bleeds, hydrocephalus, shunts, C.P., BPD(vents including ossilation vent), athsma, PDA (surgery), ROP(surgery), blood transfusions, paralized vocal chords, hernia that miraculously dissapeared, growth and feeding issues, reflux, therapies galore, daily medications, processing issues, supposed to not talk, hear see, or walk lays in his little bed singing with his beautiful little voice. He has difficulties, but for some reason he is able hear the song of a bird. He is able to see colors on butterfly wings. He is alive, he has an inquisitive mind, and he has a loving heart.
I feel so blessed to be the mother of such wonderful children....Jacob, Joshua, Hannah and Nathan. Even though Jacob was here for so brief a time, I know that he was and is a part of Heavenly Father's creation spoken of in that song; just as each of my children are.
My thoughts are with you and your little ones.
Tiffany
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