A quick summary
Sep 2, 2006 10:31 AM
Hi,
I have been visiting this site for about a year now. I have enjoyed reading everyone's stories and seeing pictures of your children. Often I find myself crying when I read your stories....sometimes I can't wipe the smile off my face. Several times I thought I would post our story, but it has seemed so hard. So much has happened since we had our premature twins...I haven't known where to begin with our story. As many of you know, no matter how much time has gone by, the pain of a loss never really goes away. Some days you do just fine....and other days it seems like everything makes your cry. Even if I start bawling, I thought I would just start writing little bits over time instead of everything all at once(if I wrote a short story instead of a blog the story would turn into a novel! Ha ha ha).
Anyway,When I was in elementary school, every year our school would do a "walk/run" fund raiser. We would go get sponsors and then on the "walk/run" day all the kids would walk or run around the track as many times as they could. Then we would collect the money to donate the The March of Dimes. I never really knew or understood what the March of Dimes was, but it was sure fun to run! I wish when I had my twins I had known about this website....I felt so alone.
I gave birth to identical 25 weeks twin boys about five years ago(They were born a few hours short of 25 weeks). Jacob weighed 1 lb 13 oz and Joshua weighed 1lb 10oz. Jacob only lived two days. I didn't get to see him much while he was alive. Joshua is still here with us. He just turned five on July 28. He is a walking miracle. He had a bad brain bleed, he acquired hydrocephalus do to the brain bleed and now has a shunt(four surgeries so far due to this). He had ROP(surgeries, patching and glasses), PDA(ligation surgery), BPD (extended ventilation with an oscillator, came home on oxygen, 2 years of RSV shots), he was tongue tied, reflux, blood transfusion....oh, I don't remember everything right now. He has since been diagnosed with mild CP, failer to thrive, and Asthma...he's worn numerous orthotics...even a helmet to reshape his head. Despite everything he has been through, he is amazing. He could identify the whole alphabet by two years old, by three he was learning sight-words, in his fourth year he started to sound out lots of words and began reading at about a first grade level. I wonder what he will do this year!?
We also have two other children. My daughter Hannah is three. She tried to come early, but with bed rest, cerclage, and daily medication I ended up having to be induced in my 39th week. Nathan, is 14 months old. I had a cerclage placed when I was pregnant with him and had the same great doctor that I had when I was pregnant with Hannah. I was induced with him also at 39 weeks(he was 9 lbs 2 oz!!..a big difference from 1 lb 10 oz.).
I feel really blessed to have these children. Having lost one has taught me a lot. It has taught my children also. Just tonight my daughter was telling me that she really missed Jacob. She asked to see his hand prints and then asked me if he was like Jesus, if he was alive again. I then explained no, he is not alive right now, but someday you will see him. Children are so special and so very innocent. Well, thank you for reading this. I will post more soon, and maybe some pictures. I am glad they have a site like this. Good night :wink:
I have been visiting this site for about a year now. I have enjoyed reading everyone's stories and seeing pictures of your children. Often I find myself crying when I read your stories....sometimes I can't wipe the smile off my face. Several times I thought I would post our story, but it has seemed so hard. So much has happened since we had our premature twins...I haven't known where to begin with our story. As many of you know, no matter how much time has gone by, the pain of a loss never really goes away. Some days you do just fine....and other days it seems like everything makes your cry. Even if I start bawling, I thought I would just start writing little bits over time instead of everything all at once(if I wrote a short story instead of a blog the story would turn into a novel! Ha ha ha).
Anyway,When I was in elementary school, every year our school would do a "walk/run" fund raiser. We would go get sponsors and then on the "walk/run" day all the kids would walk or run around the track as many times as they could. Then we would collect the money to donate the The March of Dimes. I never really knew or understood what the March of Dimes was, but it was sure fun to run! I wish when I had my twins I had known about this website....I felt so alone.
I gave birth to identical 25 weeks twin boys about five years ago(They were born a few hours short of 25 weeks). Jacob weighed 1 lb 13 oz and Joshua weighed 1lb 10oz. Jacob only lived two days. I didn't get to see him much while he was alive. Joshua is still here with us. He just turned five on July 28. He is a walking miracle. He had a bad brain bleed, he acquired hydrocephalus do to the brain bleed and now has a shunt(four surgeries so far due to this). He had ROP(surgeries, patching and glasses), PDA(ligation surgery), BPD (extended ventilation with an oscillator, came home on oxygen, 2 years of RSV shots), he was tongue tied, reflux, blood transfusion....oh, I don't remember everything right now. He has since been diagnosed with mild CP, failer to thrive, and Asthma...he's worn numerous orthotics...even a helmet to reshape his head. Despite everything he has been through, he is amazing. He could identify the whole alphabet by two years old, by three he was learning sight-words, in his fourth year he started to sound out lots of words and began reading at about a first grade level. I wonder what he will do this year!?
We also have two other children. My daughter Hannah is three. She tried to come early, but with bed rest, cerclage, and daily medication I ended up having to be induced in my 39th week. Nathan, is 14 months old. I had a cerclage placed when I was pregnant with him and had the same great doctor that I had when I was pregnant with Hannah. I was induced with him also at 39 weeks(he was 9 lbs 2 oz!!..a big difference from 1 lb 10 oz.).
I feel really blessed to have these children. Having lost one has taught me a lot. It has taught my children also. Just tonight my daughter was telling me that she really missed Jacob. She asked to see his hand prints and then asked me if he was like Jesus, if he was alive again. I then explained no, he is not alive right now, but someday you will see him. Children are so special and so very innocent. Well, thank you for reading this. I will post more soon, and maybe some pictures. I am glad they have a site like this. Good night :wink:
COMMENTS
- Sep 2, 2006 5:14 PMI am sorry for the loss of Jacob. I sounds like he is still very much here in the hearts of your family. You have been bless with the joy of three wonderful children. I understand some of what you are going through with your little miracle boy. My daughter is two (29 wk) was also diagnosed with mild cp and failure to thrive. She has since overcome her failure to thrive diagnosis. Of course her cp is forever but she is doing great. She recently started walking and that was the biggest thrill for us.desiree
- Sep 2, 2006 6:08 PMWelcome to the world of blogging! I am so sorry for the loss of your precious Jacob. It is quite obvious that he is always around you in your hearts!It sounds as if you have 3 amazing children and I couldn't be happier for you. I can't wait to see pics of them all.Thank you for sharing your incredible journey!Donna
- Sep 2, 2006 9:03 PMWelcome to Share! I enjoyed reading your story and can't wait to hear more about you kids. Sorry for the loss of Jacob. I'm sure you all miss him very much!Crystal (Gavin's Mom)
- Sep 2, 2006 9:53 PMI'm so glad you decided to post your story - I loved learning about your precious family. I am sorry for you loss, I'm sure Joshua's brother watches over him every day and is incredibly proud of everything he has accomplished. :)Just like his mama.Sam
- Sep 2, 2006 11:18 PMI am also glad you posted your story! Welcome to Share and the wonderful world of blogging. I am sorry for your loss, I believe it is something we get through not over. I am so glad you have 3 wonderful children here to love and hold and look forward to hearing more about them.Have a great day!Jessica
- Sep 3, 2006 9:55 AMWelcome to Share! Thank you so much for telling us your story.I am so very sorry for Jacob's loss, no parent should ever have to go through that. We lost two of our triplets in the NICU, they were born at 25 and 26 weeks. Our survivor is 3 now and a miracle himself.I look forward to reading more of your story.
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